Thursday, July 18, 2013

More Lost Teeth & Potentially Good News

Can you believe that Riley lost 3 teeth in one week??  She lost the 2nd top front teeth shortly after the first.  The bottom eye tooth came out just a couple of days later.  I can't believe that my baby is so grown up ... and her 7th birthday is just around the corner.

Riley had an appointment with Dr. Sherrod yesterday, just a routine appointment, but one that had me leaving with a smile on my face.  Riley gained almost a whole pound from her last appointment in February when they added the appetite stimulant to her routine.  One pound doesn't sound like much, but in her weight-height ratio this is a big deal.  Dr. Sherrod wanted me to see if Dr. Sallee, her cardiologist would be okay adjusting the timing of her Inderal (aka Propanolol) so that we could do every thing she ingests by mouth.  As long as she can keep gaining weight and we have no issues, then we can take out the g-tube.  Like for good.  No more g-tube ... ever.

I asked Dr. Sherrod about the need for another swallow study, in regards to her aspirating issues.  Dr. Sherrod said that worst case in the next swallow study is that she would stay the same, but she would not go backwards.  So, taking out the g-tube (all things considered) would be no big deal.  My next question of course, was what does the removal entail.  Well, apparently not much.  It's just a matter of deflating the balloon on the g-tube and taking it out, and covering it with gauze while it heals up on it's own.  So there is a chance that we will be starting 2014 tube-free!

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