Katie Beckett Medicaid

We've been dealing with trying to renew Riley's Katie Beckett/Deeming Waiver medicaid since August 2012 and it has been nothing but headaches.  We got all the paperwork together, got the doctors to sign off and sent it all it, only to get an initial denial.  I've bee appealing, and faxing in all sort of papers and supplements.  Then last week I got a packet in the mail and it looked like they wanted it all sent it again.  Okay, frustrating  but I did it; I copied everything and mailed it in (with 12 dang stamps on it!) only yesterday for the April 15th deadline that they gave us.  Low and behold what comes in the mail today?  Our final denial.  How does that makes sense, they didn't even get the additional papers that they requested yet.  Ugh!  We will be requesting the hearing to appeal.  Keep your fingers crossed and wish us luck - we need it.