Despite the fact that we told ourselves that we would not be coming back to Egleston, here we are again. Riley started getting sick last week and Nana took her to the pediatrician last Monday. There they told us that she had acute sinusitis and gave us a prescription for an antibiotic. We were told that if Riley developed a fever that we should come back to the office. Well that started on Friday night - Riley got a fever of 100.4 and we gave her some Tylenol and were fever free until Sunday night when she had a low grade fever of 99. We opted to have Nana take Riley hack to the pediatrician on Monday and Dr. Landis decided that since Riley had a fever of 101.8 and her O2 was down to 88%, it was best if we just took out little selves right back to Egleston. Riley & I sat in the ER from about 1:30 on Monday until 10:00 pm that evening when they finally admitted us to the PICU. Riley had a chest x-ray, blood work drawn, several breathing treatments and an IV put in while we were there.
This is our first visit to the PICU and we are used to being on the cardiac floor, overall these are all new nurses and techs for us to get to know. Nana spent the day her in room 4123 all day yesterday and I took a half day so that I could pick up Zoey and bring her to the Robey's for a couple of hours (thanks Becky & Jeff!). Oh yeah, Josh is in California for work, so Nana & I are running the show this week. It seems that Riley will be here for a couple of days as they need to get the results from the cultures they took in the ER and that takes at least 48-hours. They are about 99% sure that what Riley has is viral, but she is on an antibiotic just to be safe. The biggest thing that we are focusing on is getting Riley off the high-flow nasal cannula and have her hold her O2 levels at the same time. Poor baby hasn't had anything to eat since noon on Monday and having personally been on an IV for 2 days, I know you still get hungry regardless of whether or not you are getting all the nutrients that you need or not. The reason she's not eating is that with the high-flow cannula, the air going into her nostril is higher than she can breath it in and that in conjunction with adding formula would most likely make her vomit.
So now I am sitting around waiting on a doctor to come by and tell me what is going on. We're curious to know if we should have Riley's T-cell count tested again, and if we should expect every cold to turn into something more serious that will land us back here. Or is some of this purely due to the fact that she is only 6-months old and as her system develops and she continues to grow her immunities then things shouldn't be so bad in the future. That is what the ER doc thinks, but the doc on call yesterday that spoke with my mother-in-law seems to think its like a 50/50 thing with her age combined with the 22q. It just seems like each doctor says something different. So which is it?
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