This is a blog about my family; Michele (I'm the mom), Dad Josh, big sister Zoey Lynn and our new addition Riley Rose. Riley was born with 22q11 Deletion Syndrome aka DiGeorge's Syndrome which we are finding to be a daily challenge
Friday, January 7, 2011
1-7-11 7am
So last night was not the best night for Riley. She had to be suctioned about every hour - she would build up so much mucus that it would block her airway and her O2 would drop, they would suction her and then she would be better - for about an hour. Then it would start all over again. Today will be day 16 with this mucus, we need to start getting some answers about it or she is going to keep getting these ear infections and pneumonia type things.
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