This is a blog about my family; Michele (I'm the mom), Dad Josh, big sister Zoey Lynn and our new addition Riley Rose. Riley was born with 22q11 Deletion Syndrome aka DiGeorge's Syndrome which we are finding to be a daily challenge
Monday, February 28, 2011
PostOp Day Four 5:45pm
So Riley spiked a fever this afternoon that could be due to numerous things (the excess fluid in her lungs, her general not feeling well, an infection in her incision, an infection somewhere else in her body). So they decided to give her tylenol. This brought down her temp a whole degree in about an hour. She has slept most of the day and even after two suppositories we still only have one small little poop. So most of her current set-backs (temperature and not keeping O2 up without help) could be from the excess fluid in and around her lungs which we are treating with excess diuretics. This is supposedly normal for post surgery babies. I was just hoping that for once in her short life stuff would go 'according to the book' for little Riley, but that doesn't seem to be the plan for her. Hopefully though once we get back home she will start to get back ahead of the game.
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