So Friday and Saturday were phenomenal days for the Jacobs' family. Following Michele's procedure on Thursday evening she was able to enjoy her birthday on Friday as she felt good for the first time in weeks. The procedure seemed to have worked so that was excellent news.
Riley actually started to show a lot more interest in her surroundings on Friday and Saturday - in fact she loves the ceiling fan in the living room and watching it move is a favorite past time of hers. She also has started smacking her rings on her play mat and she follows your face around from side to side if you are talking with her. These are all good signs at the moment, but Saturday afternoon brought some wonderful news.
Dr. Kobrynski, who runs the Southeast Regional Center of Excellence for 22q and who is an immunologist, called Michele. She saw Riley on the Monday before she was released from Egleston and they ran some blood work on the actual day she was released to check for a lot of stuff. Dr. Kobrynski stated that Riley's T-Cells work like normal and that the low immunity that some kids with 22q experience doesn't seem to be effecting Riley. WOOOOHOOOOOOO
While Riley still has a gaping hole in her little heart, she has to eat thru a tube (that happens to burst out of her stomach every once in a while), and she breaths incredibly fast due to her heart condition - she may not have to face the constant sickness that other children afflicted with this syndrome do. This is a huge win for little Riley - we have heard stories where kids are in and out of not only the doctor's office, but the hospital every other week fighting off some different sickness that they contracted. Hopefully the data is right and Riley isn't one of them.
Our friends have been wonderful the past couple of weeks supplying us dinner on a nightly basis - I don't know how to thank them for their wonderful kindness and affection. After we have Riley out of the woods a bit, I plan on throwing a giant party for everyone and at least try to repay the work that they have put in for us. Thank you again for the thoughts and love.
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