I can finally say that all my girls are under my roof. It is one of the highlights of my life. Riley Rose came through our door around 4pm today. Her sister was brought home by Aunt Nellie shortly after that and both sisters enjoyed their first unburdened time with each other.
Zoey has been wonderful so far with her little sister. Very very sweet and loving. She has already read her 3 stories and can't wait to do more. She is very curious about how she can help - even with setting up her feeding and such.
Here is her set-up at home
We have already had her first diaper change at home, her first feeding tube attachment, and her first round of medicines (she got 4 this time). We have 8 different medicines to give her at 5 different times a day (6am, 10am, 2pm, 6pm, and 10pm). It is going to be a lot of work, but I wouldn't trrade it for anything right now. All my girls are under one roof and my life for tonight is wonderful.
We found out today that Riley's brain scan showed that her brain is normal shaped - which is more then I can say for most of the Jacobs'. Her last lymphocite level (a good indication of immunity) was down to 14% - they want it to be at 60%. They did say that this could be due to the surgery though. They are not only researching the amount of lympocites, but are they working.
We have our first pediatrician visit tomorrow morning - and so the doc visits start. We will have at least 1 every week for at least the next 3 months (sometimes 2). Our wonderful neighbors have started to make us dinners - we had an awesome mexican soup from the Robey's last night and tonight was the Mayville's lasagna. We can't say thank you enough to everyone, but we will keep trying to.
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