This is a blog about my family; Michele (I'm the mom), Dad Josh, big sister Zoey Lynn and our new addition Riley Rose. Riley was born with 22q11 Deletion Syndrome aka DiGeorge's Syndrome which we are finding to be a daily challenge
Friday, October 8, 2010
10-8-10 2pm
Riley's tests have been looked at by the technician, but the cardiologist needs to look at her still, so we are just waiting to hear more. As soon as they get Michele some food in her for lunch, I will be taking her down to see her 'starfish' for the first time since about 9:30pm last night. Michele is putting on a brave face, but she is dying to go see her little one. We will let you all know more once we do.
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Thanks for the updates! I hope you guys get to give Riley big hugs & kisses! We'd love to see a pic of Mommy & Daddy with Riley if it's possible. I hope your all doing well today & Michele I hope you were able to eat an actual lunch :) can't wait to read more postings - our NY lives have been taken over by this Blog! Great idea Michele! I hope to talk to you soon! Love ya, Love Melissa*
ReplyDeleteNo kidding!!! It's all I keep doing (and I guess Melissa is too althugh I can't see her monitor). I love opening it and seeing a new post. Makes me miss you more- but that can't be helped.
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